Erik Quinn: The Heart of a Family: Restless

Saturday, July 05, 2008


I'm feeling completely uneasy and restless before the convention. After I decided I was sick and tired of being cooped up in the house, I briefly visited a girlfriend and then drove to the restaurant down the street to play slots and sip on a diet soda poured over ice cubes and lemon slices in a giant Mason jar. After the caffeine hit my bloodstream and I won $20, I came home, more jittery than ever. I can't seem to focus on anything! I did manage to cut Erik's hair and do some laundry.

We had our Independence Day celebration here. I barbecued steaks and chicken, and my mother brought over potato salad and rhubarb custard pies. Another family friend and charter member of Erik's fan club joined us, too. The guys attempted to fix my kitchen range, which has been malfunctioning in a giant way, requiring me to turn it on and off at the fusebox each time I cook a meal. They spent hours on it. I made a pitcher of sangria with apples and white peaches, and we visited, drank, and feasted until it got dark, when we migrated out to the back porch to watch the fireworks display off the top of the nearby butte.

Erik has been excited about the fireworks for days. He remembers them from last year and seems to have lost any anxiety he had about them. He had no nap all day and was still going strong by the time they began at 10 p.m. He ran back and forth between us all and refused to sit still, springing up and down and spouting off random lyrics from some of the songs on his favorite music CDs. Because we live far enough away, the sharp cracks and whistles of the fireworks were a bit muffled, and he had no problem with noise whatsoever.

There were two things that made my heart skip a beat yesterday. Erik climbed the ladder up to his slide in the backyard with very little assistance and lots of encouragement a couple of times. He also retrieved a container of bubbles, unscrewed the cap, fished out the plastic wand, and successfully blew bubbles alone yesterday for the first time. He talked up a storm while he did it, stringing together words in new ways and causing me and my mother to look at each other in amazement. He still has a strange and hilarious Cajun accent ("Ohhhh...lookidat!"). Earlier in the day when I turned on Fox News, he got right up in my face, tilted his head adorably, and suggested, "How bout we watch Elmo instead?" The past month has been absolutely amazing. We have witnessed another giant leap in development for Erik after months of a quiet plateau. He has been great fun to watch, and I am so incredibly proud!

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Blogger Lisa said...

The conference is going to be so nice, I wish we were going so I could spend time with you and everyone else. Erik is getting so big I am glad you all had a good fourth

6:03 AM  
Blogger Katie said...

Eric is doing so well!! Im proud of him too :) I remember the day Jai first managed to blow bubbles - he was so proud of himself, they grow so fast!
Glad you had a fun 4th and i hope that the hours spent by tradespeople slaving over your stove didnt cost as much as a new one! lol
take care xxoo

6:09 AM  
Anonymous Anonymous said...

Gua said,
It was a great holiday.. Erik was on top of the world. I have a shirt that declares, "A child with Williams Syndrome makes me proud every day." I'd like to add another shirt to my wardrobe. It will say, "The mother of a child with Williams Syndrome makes me proud every day!"
We're about to pile into our little Subaru and head down the road to the convention.. I know we'll have difficult moments, but I also know that it's the right thing to do and the right time to do it. We'll all be just fine!

See you at LAX!

Love, Mom

7:23 AM  
Anonymous Anonymous said...

Love the Elmo part! Ha ha! How can you resist? Sean has those plateaus as well, and then out of nowhere it seems, he's doing all sorts of new things. Yeah for Erik!


5:18 PM  
Blogger Julie said...

Sounds like he is doing great. Thank you soooooo much for your post about the ladder. Noah's PT brought a little tykes slide. The goal is to get him to climb the steps on his own, get his feet out from under him, and come down the slide. He wants no part of it. It made me feel better because Erik is older than him and just now mastering it. Isn't it funny that I no longer really care if he meets typical standards, I just want him to reach WS standards. Have a blast at the convention. I wish I was going too. We could have sangrias together.:)

6:20 PM  
Blogger Michelle said...

we're going to a Ds convention for the first time this weekend; I have some anxiety about it as well, but I'm looking forward to meeting some blogging friend "IRL" so there is that! :) Hope you're able to enjoy the convention and get some great info out of it!

7:46 AM  

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