I scheduled Erik with a pediatric rehabilitation specialist in April. This appointment materialized after his private physical therapist reported his body was much more rigid these days and his pediatrician, although I have a lot of faith in her, doesn't seem to know jack about WS. However, Erik's pediatrician was more than happy to refer us. When the paperwork went through, an unusually pleasant woman named Audrey called the house to set up an appointment. We were not able to get in until April, but I explained to Audrey that since we are unable to see a WS specialist on a regular basis (we seem to be living in the wrong region for that kind of thing), I would like someone to give Erik's poor old body a once over just for his mother's sake. No hurry. It's hard to know what I am supposed to be doing with little to no guidance from medical professionals in this region, but I'm following my gut. It was my gut that led me to this diagnosis in the first place almost two years ago.
I already feel better.
Labels: physical therapy, rehabilitation, Williams syndrome