Our experiences with Williams Syndrome, a rare genetic disorder.
Thursday, August 30, 2007
It's not even 3 a.m. yet. We now have flashes of dry lightning illuminating the dark rooms of this house. Erik cried off and on until 2 a.m., and I eventually found him standing in the corner of his room sobbing and repeatedly muttering "fireworks." I put him in bed with us, which I never normally do, but now I can't sleep. I listened to Erik's heaving, sob-filled chest slowly relax and his breathing deepen before I got out of bed and went to lie down in his. I finally gave up on sleep, and here I am.
I don't know if I can do this another night. The weather report doesn't look good.
Married to Brian in 2001. Our son, Erik, was born in October 2004. Erik was diagnosed with Williams syndrome by a geneticist in March 2006 at 17 months of age. The diagnosis was confirmed by FISH testing a few weeks later.