Our experiences with Williams Syndrome, a rare genetic disorder.
Monday, August 04, 2008
A Glance Over My Shoulder
Talking about the convention has been like attempting to create a beautiful mural on a cathedral ceiling with a miniature paintbrush. I find it impossible to describe everything to my satisfaction here, but I hope I was able to make those who were not sitting by my side feel like they were. It was an intense experience I do not regret and will remember my entire life.
Married to Brian in 2001. Our son, Erik, was born in October 2004. Erik was diagnosed with Williams syndrome by a geneticist in March 2006 at 17 months of age. The diagnosis was confirmed by FISH testing a few weeks later.