I can't speak for my son, my husband, any member of our families, or my friends. I speak for ME here. I will never intentionally pretend to know how anyone outside of this particular woman named Nancy is feeling.
Today I asked myself today why I continue to keep a web log. Something is changing.
The answer: I blog because it is socially expected that I smile sweetly in public when I feel like screaming, sobbing, or assaulting someone related to my emotions that stem from the horribly cruel birth defect that my beautiful son happens to have. I have very successfully put on a brave face through therapies and children's birthday parties and parent groups and doctors appointments and IFSP meetings when it was the last thing I felt like doing. I believe that I have jumped through the correct hoops at the correct times, and I have acted appropriately and ladylike. I have prayed the appropriate prayers, and I think I'm a pretty decent mother. I have been invited to be on boards and attend meetings outside of what is normally expected for a special needs parent. I don't believe I have embarrassed anyone. I have even kept my tears to a minimum lately in order to minimize any discomfort I may cause the people around me.
However, these emotions and thoughts have to go somewhere.
If you see me on the street, it is very possible that out of politeness and in the interest of saving your valuable time I may serve you up a white lie and report that life is a beautiful bowl of cherries when I feel like curling up in my closet under a blanket for the rest of the day. Thankfully, because I have this outlet, I get up and face this big, old world every glorious day. I'm not alone. I do this just like all of the mothers I know who wear similar shoes. If we didn't, we would be missing out on a lot of what is right and what is beautiful in each day. You just have to wade through some ugly to get there, and the right and the beautiful, as it turns out, are even more wonderful after that.
Unfortunately, a lot of what I say isn't pretty. It's not supposed to be.
When nobody knew I was writing here, I wrote anyway. At this point, there are more people reading my thoughts here than I would have ever imagined would have bothered with me. That's really frightening sometimes. The side effect of this is a new sense of shame and guilt when something un-pretty comes out of my head. I have come to love many of you who come here. Never in my wildest dreams did I imagine that would happen. All I can do is warn you that you will never hear lies from me here, and I hope that I do not upset someone with my own thoughts. I am not sure what to do with these new feelings besides making this journal completely private from this point forward. I'm not ready to do that. So I just issue the warning that this is my journal and these are my raw thoughts. They are true, and I want to put them down so that, God willing, I can look back on my life and see how far I have come as a mother. I am so incredibly lucky to be a mother.
Okay, at this point, Ted Kaczynski's manifesto was more succinct and made much more sense. What I'm trying to say is this: You are witnessing a woman grieve. You are seeing someone bleed gallons of sticky, copper-scented blood. You are watching someone heal twisted, ropy scars. Some of you have no idea what I'm feeling, but you come here anyway, and I always attempt to take you with me on this ride through my writing. In this sense, my blog has turned into something fabulous, because I never feel alone. Ever. There are those of you know exactly how I feel and have similar scars. Frankly, I am hurting right along with you, and, dammit, I truly believe many of us are making progress. It's not a pretty process. If it is, then something isn't quite right. That's my opinion.
This is the most incredibly personal thing I have ever dared to do, and it's only because of the wonderful feedback I have received that I have kept baring myself in a very public forum under a very bright spotlight. Much of what I write is happy, but much of it is not, and I will not apologize for it. That wouldn't be fair to the people who come here to read my true thoughts or to myself. There is poison inside of me, and when I write, I feel normal again. That's a pretty amazing gift in a life like mine. I have always grappled with my struggles through writing. After I am finished typing here at my desk, I am almost euphoric. I feel like I have just been violently ill but know I will not be sick again for some time. I then get up and go on with my daily life, and I am thankful for who I am and what I have. It is good. I am a fairly happy person on most days. I pray that you can feel the same emotions if they apply and can let them ebb and flow just like I do in order to heal and move on. I don't want to depress anyone or cause them sadness. Maybe I'm completely flattering myself, and I haven't made a dent in one single moment in one single day of one single life. You know what? I'm really completely okay with that. However, I have a knot in my stomach and would never want to hurt anyone with my words. This just needed to be said. If I'm doing more harm than good, I'm hanging it up and will continue to write--in private.
Whatever happens, thank you for loving me, scars and all.
By the way, I love you, too.
-- N
Labels: grief, Williams syndrome, writing