Our experiences with Williams Syndrome, a rare genetic disorder.
posted by Nancy at 3:04 PM
Thanks for sharing.
That was INCREDIBLE! Thanks for posting.Maureen(Nicholas, 2.5 yrs, WS)
Hi Nancy. :)I wanted to say thanks for reading my story about Niko. It means a lot to me, especially since you're familiar with him. Is there a place where I can read your work? I think I told you once, but when I'm looking for some lovely writing, I come to your blog.
loved that SO much.
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Married to Brian in 2001. Our son, Erik, was born in October 2004. Erik was diagnosed with Williams syndrome by a geneticist in March 2006 at 17 months of age. The diagnosis was confirmed by FISH testing a few weeks later.
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